ATTENZIONE : Comunicazione Internazionale Ricerca Clinica Sindrome di WAGR -National Institute of Child and Human Development, NIH apre un progetto di ricerca clinica per la Sindrome di WAGR invita i pazienti ( bimbi e adulti e genitori ) a partecipare allo studio clinico International
WAGR Syndrome Research Study
Children and adults with WAGR Syndrome and their parents are invited to participate in a clinical study sponsored by the National Institute of Child Health and Human Development, which is part of the National Institutes of Health (NIH)
The purpose of the study is to learn more about how the genes involved in WAGR Syndrome affect people with this condition
Involves sending blood samples and medical records to NIH investigators
For more information, please contact:
Joan Han, MD Rebecca Levinn, BA
Research Investigator Study Coordinator
(301) 435-7820 (301) 402-6762
hanjo@mail.nih.gov [3] levinnre@mail.nih.gov [4]
Department of Health and Human Services
National Institutes of Health
National Institute of Child Health and Human Development
Document
WAGR SYNDROME RESEARCH NICHD/NIH updated 7/07
Investigación del síndrome WAGR
* Invitamos a los niños y adultos con el síndrome WAGR y sus padres a participar en un estudio clinical patrocinado por el Instituto Nacional de Salud Infantil y Desarrollo Humano, uno de los Institutos Nacionales de la Salud (NIH)
* El objetivo del estudio es aprender más sobre cómo afectan los genes implicados en el síndrome WAGR a la gente con esta enfermedad
* Hay que enviar espécimenes de sangre y documentos médicos a los investigadores de NIH
* Para aprender más, favor de contactar a:
Joan Han, MD Rebecca Levinn, BA
(Investigadora) (Coordinadora del estudio)
(301) 435-7820 (301) 402-6762
hanjo@mail.nih.gov [3] levinnre@mail.nih.gov [4]
Departamento de Salud y Servicios Humanos
Institutos Nacionales de la Salud
Instituto Nacional de Salud Infantil y Desarrollo Humano
Document
Investigación del síndrome WAGR updated 7 07
